Category Archives: Thoughts

My GP Calls

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Thursday 19th September

My GP telephones me just before I am about to put dinner on the table!

He wants to know how I am, how I am coping, whether the pain and swelling are getting me down, and whether I am sleeping properly. He is genuinely concerned, and is sorry for all I am going through.

We discuss my return to work, and he is adamant that I must wait until at least I’ve had my appointment with the plastic surgeon in Exeter, on 4th October. In fact he says he will write a sick note for eight weeks, taking me into November. However, if I’m up to it, I can return to work sooner. He also agrees to prescribe me some sleeping pills.

Maybe at last I can sleep through the night without waking up only to stare at the dark ceiling, thinking dark thoughts about this dark disease.

The night before

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Monday 9th September

I left school a bit earlier than I should, (I didn’t have any classes in the afternoon), drove home, quick wash and brush up, and then we’re on the way to Exeter, staying in a hotel overnight, ready for surgery tomorrow.

It’s almost four months since my Wide Local Excision, and tomorrow it’s down to nuclear medicine for radioactive dye injections, followed by Sentinel Lymph Node Biopsy of the left groin.

I go to bed thinking, wondering, scared of the unknown.

Fat toes and gashed elbows

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Monday 8th June

My weekly visit to the practice nurse saw us discussing swollen, fat toes and over-granulation of the skin. Hmmm, doesn’t sound too pretty! My fourth and fifth toe remain puffy and podgy, and are hypersensitive to touch. In between the toes, where it is warm, moist, and constantly under pressure, the friction of rubbing together, and the graft not taking, the skin remains red raw, and the scar tissue keeps on growing (the over-granulation). Bleurrgghh. The nurse says if it wasn’t for the skin graft, she would probably use silver nitrate to get rid of the excessive scar tissue. But, we’ll wait and see what the consultant says on Monday.

I now seem to have two differently sized feet; my left foot appears to be two sizes bigger than my right! Ha ha, not! When can I wear dainty, summer sandals? High heels?

Anyway, about an hour after returning from the surgery, my mum pops round on her way to the beach. She remembers that she came to see me to ask for a plaster for her elbow, as she had fallen up her steps, coming back from the town. It’s only a graze, she says. Upon closer inspection, I realise it is a rather nasty, deep looking gash. Off we go, back down to the surgery for my second visit of the day, to see the same nurse. Lots of local anaesthetic, three stitches, a SteriStrip, gauze dressing, padding, bandage and an arm stocking, and mum is ready to be driven back to our house, by my husband, for a therapeutic cup of tea. No beach today!

The long-awaited letter arrives

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Friday 5th July

I received a letter this morning from the consultant plastic surgeon in Exeter for an appointment a week Monday. The letter says it will just be an initial consultation, so I will go along with all sorts of questions . . . . the main one being, if it’s not life-threateningly desperate, could he hold off any surgery (a delayed Sentinel lymph node biopsy procedure), until after the summer holiday ~ do you think that’s cheeky or selfish or foolhardy on my part???? We booked our flights to America way back in January, for a five and a half week road trip.

I’ve been thinking so much about the arrival of this letter, that when I did open it, it made me feel a bit sick/scared/worried. It’s the prospect of not knowing what they might find, plus the actual procedure itself.

A number of fellow melanoma-ites have suggested that not many surgeons carry out a SLNB unless it is done at the same time as the original WLE.

Still, needs must, if that’s what the consultant thinks.

I have just over a week to wait . . . . .

Stitches removed ~ ouchy ouch

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Monday 1st July

Down to the surgery this morning to see the practice nurse and yes, the stitches on my back were more than ready to be removed. One long, tidy running stitch with nine loops. It was mighty sore when the last few had to be tugged and pulled out. A little bit of bleeding necessitated another dressing ~ I think my skin had started growing through the thread, and it was becoming too tight, and a bit inflamed.

It certainly felt very different, sitting in the car, being driven home. The tight, bruised, stretched sensation I had, has now gone. It’s still a bit sore, but improvement is surely there.

A bit wary that when I do sit down, or lie on it at night, I have this awful thought that the scar will split open and my insides fall out! Stupid, irrational, I know; but I can’t help it.

BUT, at least I know all of the scar and surrounding tissue that had been cut away is clear of any disease.

Reasons to be cheerful 🙂

My foot seems to be healing well, but there is a raw patch between my toes, where the skin graft didn’t take. I can now though, wear a loose pair of FitFlops, which is way better than the foam and Velcro bootie. However, my foot still is really swollen; the nurse says this is normal, and may take another two or three months to return to normal. Ha! Oh joy! The nurse also had the doctor sign me off for the rest of the term. No school until September. Wow!

Oh, by the way, can anyone tell me where May and June went?

Apart from two lots of major surgery on my foot, skin graft, two slices out of my back, infections, anaesthetics, antibiotics, stitches, crutches, painkillers, compression stocking, Velcro bootee, plaster cast, appointments, CT scan, twice-weekly dressings, nurses, doctors, consultants, plastic surgeons, hospitals. And in between I have lain in bed, or downstairs in the lounge, on the sofa, with my leg elevated.

Recovery and recouperation are slow, I’m an impatient patient, but I’m getting there.

A few kind words

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Sunday 23rd June

Most Sundays we visit our local supermarket to do the weekly shop.

Having paid and about to move out, a lovely lady who works on the tills made a point of stopping me to wish me well. She said that everyday she sees me I’m looking better and better.

Such kind words, spoken with sincerity, totally unexpected, really have the power to uplift the soul.

My Left Foot goes for a walk (first time in seven weeks!)

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Wednesday 19th June

Today I go for a walk, yay!

Having spent the last seven weeks at home, or visiting different hospitals and surgeries, I felt it was about blooming time I had some gentle exercise. My left foot was still rather swollen, so going out for a walk necessitates crutches and a speed akin to a tortoise carrying the weekly shopping.

Despite the slow plodding, it was so refreshing to be outdoors. The sky was a beautiful blue, the colourful boats bobbing on the sea in the harbour were straining at their anchor ropes, and the many, many people walking along the front were engaged in all sorts of activities: eating ice-creams, pushing prams, holding hands, conversing, taking photographs.

I had really missed the normality of everyday life and its simple pleasures.

My birthday

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Tuesday 28th May

My birthday ~ a lovely, long, leisurely lunch spent with family; wonderful!

A clear, sunny day, eating marvellous seafood, watching the sea, beach and blue sky.

Arrive by taxi and hobble to the table on crutches. Everyone is so kind and attentive.

I love my family.

It’s because you like the sun

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Sunday 26th May

Well, this month has really flown by, but I don’t seem to have been part of it at all! Two major operations, visits to hospitals and surgeries, three weeks in bed, getting used to using crutches, and pain; oh my goodness the pain upon trying to reach the bathroom!

All this does now seem to be easing, as I become part of a waiting game.

Waiting for the next course of action. And thinking,  and pondering, and wondering.

Why?

At work, when I first mentioned I may have a dodgy mole on my foot, one colleague’s response was: “Oh, but you do like the sun don’t you?”

Another acquaintance told me today: “You know what it is, don’t you ~ the sun”

And a relative knowingly informed me “No more sunbathing for you, you’ll have to cover up now’

Do you know, I don’t particularly want to hear your condescending claptrap. If that’s all you can say, then I don’t want to listen.

I am not stupid, nor irresponsible. I happen to like being outdoors when it is sunny; I love going to the beach, whether swimming, snorkeling, sailing, or just feeling the warmth on my skin. Sunny days are feel-good days, happy days, ones filled with smiles and laughter. And I do protect my skin, especially on my face, using SPF 15 through the winter, and 30 to 50 in the summer. Our time spent sitting on the beach on our summer holidays lasts for a maximum of a couple of hours (our son would prefer us to be elsewhere ~ shopping, at a theme park, eating).

I do not burn, nor blister. I am careful.

So yes, what is happening to me is probably the result of being out in the sun, but I do try my best to protect myself.

Sometimes life can be a little unfair.