Thursday 26th February
This is our son’s last ever six night stay in hospital. We can finally see the light at the end of the tunnel. He is quite upbeat about going in. My husband stays with him on Thursday and Friday night, then I come in for Saturday and Sunday night, with my husband completing the final two.
On the Monday our son is seen by a physiotherapist as he seems to have trouble walking, and complains of pains in his legs. He tries out a Zimmer frame and crutches. The latter seem to give him a bit more stability. Peripheral neuropathy. Not what he needs right now.
Neither is another blood transfusion, but his levels are again low, so two bags are given to perk him up a bit. His appetite is almost non-existent, but he does manage a small amount of porridge, spending most of the day asleep.
On Tuesday our son doesn’t want to get out of bed and practice walking for the physiotherapist. He simply doesn’t have the energy.
It is during this time that our younger son flies off to Spain with his girlfriend for a much-needed holiday.