Category Archives: brain tumour

A bit different


Sunday 6th August


For twenty fabulous years

Florida was the theme parks

White knuckle rides, upside downs

You knew the maps and landmarks


But this year it’s a bit different

Just Dad and I, in the summer

First time since twenty fourteen

We’ve still got much to discover


The childish fun is not there

And it seems so quiet in the morning

No SpongeBob or Power Rangers

Life with you, never boring


Thinking of you my darling

On the rollercoasters in heaven

We miss you so much my Angel

Many kisses to you are given



Early morning


Thursday 3rd August


A sunny, early morning saw us sitting by the pool before eight o’clock, sipping on coffee. Being relatively quiet at that time, we could enjoy the sounds of the fountains and waterfalls, rather than noisy children! A couple of hours later, many families and young ones began making their presence known, splashing about enjoying their surroundings.

A sultry midday, with temperatures reaching above​ 100°F, and we decided to go out in the car; exploring, shopping and finding somewhere cool for lunch. 

By the time we returned, the skies were turning a lovely dark purple, and barely five minutes after we had come through the door, the heavens opened, with monsoon like downpours. We were so fortunate.

Missing you sweetie.

Think you would like being back here very much.

Love you Angel


Off to Orlando


Wednesday 2nd August


Awakening super early this morning, because we’re still on UK time, we watched the television news reporting flooding in Miami the previous evening and cars still abandoned in streets with over a foot of water. In some parts, 8.7 inches of rain fell, with thunder and lightning. No wonder our flight had been bumpy, and was forced to fly a route south, almost halfway to Cuba, back over the Keys and Everglades, before coming into Miami ~ all to avoid the storm.

Having collected our hire car, we drove along the Dolphin Expressway, then onto the Florida Turnpike all the way to Orlando where we’ll be for a week. 

We first came to Orlando in the summer, in 1996 with you and your brother, and back again most years since, and a for a few Christmases too. You loved the place, and had so much fun here: the theme parks with their white knuckle rides, water parks, shopping, food, different television programmes, and people watching.

We so wish you were with us now, complete with itinerary clutched in your hand, your face beaming with expectant excitement, and pocket money for comics, books and DVD’s.

This is the first time we’ve been back in Orlando since the summer of 2014, your last visit here. It feels strange, a little quiet without you, and a lot less fun. But we’ve brought along Frankie Angel bear and the Grinch; so you’re with us in spirit, and always, always in my heart.

Miss you each and every day

Love you forever

Darling Angel son


Late evening sun, at our resort in Orlando, August 2014. You had found a book about horses and ponies

Off to London


Monday 31st July


Off to London

To catch a plane

Across the ocean

Summer smiles again


Flying tomorrow

A quick getaway

Taking you with us

For holiday play


Flight to Miami

An East coast road trip

Visiting good friends

Blue seas for a dip


Fly high sweetheart

Beloved Angel son


Life, right now


Sunday 30th July


Emptiness and togetherness

Collision and coexistence

Fragility and strength

Tears and laughter

Heartache and hope

Nothing and everything

Turbulence and tranquility

Two opposing states


Life, right now


Love you sweetheart

Missing you always

Darling Angel son


A new angel for you sweetie

Bright and sunny on the beach

Low tide and a few fluffy clouds

Angry Bird


Saturday 29th July


Frank the funny Angry Bird

Always having a laugh and a joke

A sense of humour, spreading cheer

And such happiness he would evoke


We miss everything about you

Our darling Angel son


On this day, 29th July 2012 ~ five years ago

And still no sign of the sun



Friday 28th July


Hiding the hurt

Behind a smile

Sometimes it works

Other times not…

Hiding the tears

Behind blue eyes

Sometimes it works

Other times not…

Hiding the pain

Inside my heart

Sometimes it works

Other times not…

One of those days

I’ll say I’m fine

No matter what

But really not…


I’m missing you sweetie

Love you lots

Angel son


No sun today

Only a few on the beach

I smiled


Thursday 27th July


I smiled today, whilst thinking of you

I cried too, with memories anew

I sighed a little, our love so true

I grieve so much, feeling quite blue

I whisper to you, just wish you knew

I dream of you, that you made it through

I keep on loving you, as I always do

I smiled today, whilst thinking of you.


Another Thursday

124 weeks

868 days

Missing you today, so very much

Sweetheart Angel son


So many holidaymakers in the surf: the lifeguards have their work cut out

Tents, windbreaks, parasols all vie for space on the sand

Many colourful boats in the harbour

Summer rain


Wednesday 26th July


My Angel sleeps beneath the summer rain

A gentle mist is washing away the pain

Drenching the flowers that we maintain

Heightening the colours that they contain

So in our hearts your love does remain


We miss you so very much

Darling Angel son


Yachts in the mizzle, on a grey morning