Category Archives: brain tumour

Four weeks

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Thursday 9th April

Four weeks ago today our darling son gained his angel wings. Unexpectedly. Without warning. We still haven’t come to terms with it.

Diagnosed with testicular cancer back in October, he battled his way through chemotherapy. Only his body wasn’t strong enough to take it. He was beaten at the final hurdle.

We visited his graveside again today, as we said we would. It doesn’t get any easier at all. We love him so very much, and miss his voice, his smile, his everything.

We sow some seeds along the top of the grave, from flowers in our garden. We try to think of the good times, but our grief is so immense, it just seems so futile. He was such a great companion to have around. Life seems so very empty

In the afternoon, having told ourselves we need some exercise, we go for a walk in the sunshine. Holidaymakers are on the beach, in the cafes and shops. We head for the church, to sit quietly, collect our thoughts, and light candles for our beloved Angel.

Life seems so unfair right now.

The Interment

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Wednesday 8th April

Today we bury our elder son.

Husband and I, younger son and girlfriend, sister, her husband and their daughter. A small family group to pay our very last respects to our dear boy.

The hearse pulls away a little after 10:30am, the coffin adorned with yellow sunflowers, He Man’s sword on a bed of white chrysanthemums, wreaths, sprays and bouquets. And spelt out alongside is his name. F R A N K.

We follow in a black limousine. We take a very slow drive through the narrow, and quite busy streets of the town. Along the harbour front with the sea sparkling, the sun shining in a perfect blue sky. He would walk for hours along the wharf. Then we turn up through more winding roads, and past the surfing beach, where he would wander along the sand. And then up the hill where we live. Countless times he would have walked up and down these roads, so we had to take him on one last journey. Unbelievably heartbreaking to think he will no longer be able to do this

The cemetery is only a couple of miles out of town, and we drive slowly along in silence. Pulling in, the songbirds are a joy to hear, the pink hibiscus are flowering along the driveway, and everything seems peaceful and still. We draw to a stop, get out of the car, and watch the coffin being taken up to the grave. White ribbon straps are attached, and as it is slowly lowered the church Father says prayers and commends our son to eternal life. We are all sobbing. We cast some soil on to the top of the coffin, then a sunflower each, that our younger son has brought along. We each say something, and tell Frank we love him so much.

We ask that the white flowered pillow with He Man’s sword be placed on top of the coffin. After about twenty minutes it is time to leave. We say our tearful goodbyes and head home.

Later on that afternoon though, my husband and I drive out to the cemetery, and see the mound where our son is buried. The flowers look beautiful, and cover the grave completely. There is a simple wooden cross with our son’s name on, and the flower letters spread along the length of where he lays. His final resting place. We break down. We cry and cry. We just cannot believe what has happened. He was so close to kicking this disease. Why did our amazing son have to be so cruelly taken from us?

It is something to which we will never have an answer.

We spend a few quiet moments talking, crying, tending to the flowers. And then it’s time to leave. We tell him we’ll be back tomorrow.

The last time

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Monday 6th April

Today is the last chance we have to visit you in the Chapel of Rest. It is so painful to see you lying there. You have all you need to take to heaven. The dolphin and teddy can play with the angels with you, you can read your books and watch your videos.

No more chemotherapy, no more drugs, no more blood transfusions. Your pain has gone. You are now cancer free.

But I just wish you were here to spend a lot more time with us. We weren’t ready for you to go. We had so much more planned when you got better.

It hurts us so much that we will never hear your voice or your laugh, we will not be able to have cuddles or to hold your hand. You will have to do this with the angels.

We are left with so many happy memories of you, and you will forever be in our hearts and thoughts. Everywhere we go, you will be with us.

Darling child. We love you so, so much xxx

Our Easter Angel

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Sunday 5th April

We visit our Easter Angel this morning. So cold, eyes shut, no smiles, lying still. Are you peacefully playing up in heaven? We do hope so. Again we let you know our love for you is boundless, unconditional, everlasting. We miss you even more today, than we did yesterday. We miss every single thing about you. You were so innocent and childlike.

You will be forever young. Your spirit is all around us. We lit candles in the church for you again.

I spent such a long time this evening putting together a slideshow of photographs. So many good times, happy memories, amazing adventures.

We cried a lot today.

Full Moon Angel

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Saturday 4th April

We sat with you again today, and the tears just keep on flowing. I’m forever trying to warm up your face and hands, but they’re icy cold. We talk to you, we tell you that you’re safe, we know you’re no longer in any pain. You lie so still, with the teddy and dolphin to protect you. We kiss you; kisses from us, and from your younger brother. We touch your heart, and want you to know that we are there with you, as you are in our hearts forever. Know that your brother loves you, and is just completely lost without you. He is not sleeping properly, and seems so very sad all the time. Withdrawn and heartbroken. He looked out for you, he did.

Later on in the evening, when we leave our younger son’s place, the biggest full moon is shining a path towards us across the sea. It’s you. Looking down upon us. Being a part of us. And we miss you more than words can say. Our full moon Angel xxx

 

Our Precious Angel

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Friday 3rd April

Visiting you is so painful, but we need to come and see you. We cannot leave you lonely, all by yourself.

We have to come and tell you we love you, we miss you, we desperately wish you could be here with us. Our little Angel in heaven.

We love you so much, to the moon and back, and all the world. Today, yesterday and forevermore. xxxxx

We keep our promise

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Thursday 2nd April

We go for a coffee with all the family, then walk along the seafront with just our younger son. He is very quiet and in a sad, reflective mood. He seems to be bottling up his thoughts and emotions, but we walk with him, stop and stand for a while watching families and dogs playing on the sand.

We have a cup of tea with him, then wander off home.

After much thought and great trepidation, we decide to drive to our local supermarket and coffee shop, where our elder son was so well known.

It’s three weeks this evening since he passed. So suddenly. So unexpectedly. So quickly.

It’s really hard to get out of the car, and go in through the doors. We are met by the coffee shop manager, who has become a good friend to us over the last few years. Hugs, tears, and empathy. We also bump into quite a few more people who express their shock at our loss. It felt quite uncomfortable walking round the aisles. I was almost pleased when we walked out, shopping completed. A big sigh of relief, being able to run away.

When we get home I phone the funeral director’s to ask if we can visit our son in the Chapel of Rest. Within ten minutes we are with him. We did promise him yesterday we’d be back today. And it was no easier. The pain we both felt as we looked upon him was unbearable. We just wanted to warm him up and bring him back to life. Our grief is just immense. We have lost such a huge part of our lives.

But we kept our promise. It was difficult and traumatic again for my husband to go in. But a promise is a promise, and our son would have wanted us to keep to our word.

Night night Angel xxx

 

Can I find the strength?

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Wednesday 1st April

Today I must be strong. Stronger than I’ve ever been.

But I’m floored at the first hurdle. I need to ring the Registrar’s Office first thing to confirm our appointment, and make sure they have the necessary paperwork: the Coroner’s Report. All is in order. I’m actually phoning sitting in my son’s bedroom. As I’m speaking I look round at all his clothes and shoes, and realise he will never wear these ever again. It is such a sad thought. I hug my husband and we sob into each other’s shoulders.

Big deep breath, come on, let’s get on with it. Our next task today is to take He Man’s sword down to the florist, so they can start the design for it to placed on a white flowered pillow. We arrive soon after the postman has delivered their business mail. On the top of the pile is our son’s funeral notice, ready to be placed in their shop window. Grief washes over us again as we leave.

We walk down to the church, light candles, and then sit awhile, silently sobbing.

We really must find some inner strength, for our next visit is to the Registrar’s Office. We go in, sit down in an outer waiting room, and almost immediately are called in. Be strong, be strong. We hold hands tightly as the registrar goes through the set of questions that she must ask my husband and I. Everything we have brought along is used to identify our son. From his passport, medical card, birth certificate, benefits letters; everything that proved his identification. Now, the passport corner is clipped, the computer registers his death. That’s it. He is no more. He ceases to exist in the system. We hold it together. We pick up our paperwork and leave.

But walking out, we both break down. I can hardly get to the car. We cry and sob and hurt and feel such loss. We stay in the car park for a long while, before my husband feels able to drive away.

I need to see our son now. We have a form that we must handover to the undertaker, and we have the big beautiful posters of our son, in the back of the car to give to him as well, ready to go into the church. My husband doesn’t think he can do it. Doesn’t think he can go through the doors and look upon our son. I really don’t know what to expect. It’s far too upsetting. But I must see him, no matter what. We do both eventually go in to the Chapel of Rest. I cannot describe how much my heart ached to see him in his coffin. He was wearing the woolly hat, the black velvet jacket, and the t-shirt his brother had bought for him in Spain. Placed around him were the teddy bear and dolphin, and his books. Into one tiny hand we placed his British Airways executive club card, and into the other hand, some American dollars. We also put with him a photograph of the four of us together.

He looked so peaceful as I held his hand and stroked his face. But he was so, so cold. I kissed him and told him I loved him. My husband told him his granddads would look out for him in heaven. We really cried our hearts out. Uncontrollably. It was difficult to leave, but we kissed him goodnight and said we’d be back tomorrow.

It had taken a great deal of strength for my husband to see our son in his coffin. And I’m so glad he did come in with me, as heartbreaking as it was, we all needed to be together.

Later in the evening, my brother and his wife arrived from their long journey from Chicago. All of us went out and met up with my son and his girlfriend, and my sister. I needed to hold my younger son too, and tell him I love him so much.

Today has been incredibly harrowing and traumatic, but we did somehow find the strength to make it through.

 

Church service details

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Tuesday 31st March

We have a 10:15 appointment with the Father who will be leading the funeral service for our son, one week today.

He is wonderful and puts us at our ease, but it is still such a heartbreaking time. We tell a bit of our son’s life story, and his valiant battle against the cancer that ultimately took his life. We discuss the readings, prayers and eulogy. We just want everything to be perfect. In between tears we recount tales of adventure, mischief and happiness. The Father listens intently, offering suggestions and advice to the Order of Service.

We leave, only to move onto the undertaker’s, to deliver our chosen photographs of our son, to be used in the Order of Service. It really was an emotional morning.

In the afternoon we go out in the car, to have two very large posters printed and laminated, of our darling son. These will be placed either side of his coffin in the church. One shows him laughing, having just come out of the water in Aquatica, last year. The second is a pensive one of him reading, with a beautiful blue sky background. He always had a book in his hand. The photographs look amazing, but again bring us to tears.

Having almost reached home, our younger son phones, and asks us to come down to his place for tea; we didn’t see him yesterday, and he wanted to know that we were all right.

We stay for a couple of hours, then begin our walk home. Our town is quite unique in that it places funeral notices in various shop windows, informing friends and the townsfolk of the date and time of the funeral. And of course, as we pass the flower shop, there is the notice for our son.

We walk silently in tears, holding hands, all the way home. We never, ever imagined to see one of those notices for a child of ours

It really felt like an arrow piercing through our hearts.

Clothing for a send-off

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Monday 30th March

Well, writing out the list yesterday was far easier than putting it into practice this morning. Gathering together the clothes for our son to wear in the coffin was desperately painful. Another sad and sobbing start to the day.

The black velvet jacket, white t-shirt from Spain, black trousers, underwear, socks and woolly hat to keep his hairless head warm. A pair of black leather shoes that my husband would always polish for him.

Then the toys and books: Dot and the Kangaroo, He Man and She Ra’s Secret of the Sword, and Two Brothers Go Fishing. The Ritz teddy bear and cuddly dolphin, too. I looked everywhere for his St Christopher, but couldn’t find it. However upon opening a drawer, right on the top was a sparkly green star-shaped badge with the name “Frankie”. He had worn this whilst visiting Lourdes. I pinned it to his velvet jacket. His tablet wasn’t quite fully charged, so we will bring that to him tomorrow.

A strange assortment of items to take to heaven, but in his own little Asperger’s world, they mean such a lot.

We took these things down to the undertaker, but will not be able to see our son until tomorrow. It was a painful handing over, knowing what they were for, but we want our son to look his best.

Our next stop was the florist to talk about the white pillow to hold He Man’s sword, and then a simple double spray of yellow sunflowers to sit atop the coffin. Again, very difficult to speak about. We want the very best, but it’s hard when you’re feeling so very emotional and hurting like mad.

We don’t want to go home just yet, so we walk around the town, which is filling up with Easter holidaymakers. Even when we do arrive home, we go out again almost straight away; to my sister’s for a cup of tea. We seem to be avoiding our home at the moment.

Our evening was spent trying to put together a fitting Order of Service. Trying to choose five of the best photographs proved hard. Over the last thirty years we must have taken thousands, if not tens of thousands of our son. But we did eventually settle upon what we think is a lovely tribute to him.

On a horse, with a dolphin, two happy smiling faces, and one gentle picture inside a heart.

That is where he will forever be now. In our hearts forever.