Category Archives: Thoughts

Meeting the Urologist

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Friday 3rd October

We got to Torbay Hospital with about ten minutes to spare.

The consultant had a feel, looked at the ultrasound report, and said something is not quite right. The testicle does have a hard mass inside it, but not sure what it is. Could be the result of surgery our son had when he was about five (to correct a hydrocele).

So the surgeon has ordered another ultrasound scan.

Following that we go up for yet another appointment to discuss results.

Worst case scenario, remove the testicle. This made our son very anxious and angry. He got up, shouted I don’t want to be here being treated by quacks and nurses, and promptly stormed out.

Oh, the joys of our son with learning disabilities who struggles in difficult social situations.

So again it’s another wait and see.

Off to Torbay Hospital

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Thursday 2nd October

We are off to Torbay tomorrow as my son’s urgent referral to see the consultant urologist has finally come through after almost three weeks. We’re meeting him there, and are going to stay overnight on Friday, look around Exeter on Saturday, do some shopping and home that afternoon.

My results from the CT scan over a week ago came through today as well. A trials nurse phoned to say that they show no evidence of metastatic disease. Phew!!!!! I can breathe again for another three months.

Month Nine

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Tuesday 23rd September

Three quarters of the way through the clinical drugs trial and it’s time to run between two hospitals and many different departments. Dermatology, bloods and obs, CT scan, ECG followed by an Echo, and finally the oncologist.

All starts well, but when I sit down with my trials nurse and chat, I start to feel really anxious and tearful. My blood pressure is silly-high. Scanxiety is setting in. For some reason I am beginning to dread the scan ~ or is it the results that I’m worried about. Irrational fears and thoughts are sending my mind spinning. Deep breaths, deep breaths. Hold it together.

The scan itself was quite routine and I’m so pleased when its all over. Just a week to wait for those all important findings.

Son’s A and E visit

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Monday 15th September

Our son has just phoned us. Having spent all day in the hospital in Torquay, he has just got back to the farm. He has a 3cm cyst in his left testicle which was observed under an ultrasound scan. We had a staff nurse ring at 5pm, to say that he was going to be staying in overnight, and could he be given an anticoagulant injection to prevent DVT, as he would be inactive for a long time. Half an hour later the carer that was with him rang to say he wouldn’t be staying, and they were waiting for the paperwork so that he could be discharged ~ three hours later, and he arrives at the farm, starving, tired, but sounding ok. He has had two lots of morphine, painkillers and paracetamol. He really must have been in pain.

He is now awaiting an appointment with a urologist later this week.

I think he was pretty scared.

Lymphoedema Loss

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Friday September 12th

Having gone back to work, albeit on a reduced timetable, I am very grateful for my weekly lymphoedema massage sessions. Today both legs are measured, and amazingly, my left leg has shrunk compared to the volume of fluid calculated last time. Today it has 827 mls of extra fluid than the right, only 7% bigger! If I remember, last time it was 1.2 litres, so this is good news. I did think that being back in the classroom would present problems, as far as being on my feet for long periods of time is concerned.

My leg is massaged, I lay quietly, totally relaxed. A little peaceful luxury in my day!

Trial ~ Month Eight

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Tuesday 26th August

We reluctantly fly back across the Atlantic on Sunday night, arriving bright and early Monday morning. Returning to our car, loading all our luggage, we then set off for Exeter where we spend the night, catching up on our sleep.

In the morning my first appointment is at dermatology, where the faint redness can still be seen, as a result of the cellulitis. Thank goodness for the antibiotics that I took with me! No other cause for concern is noted, following a full body check.

Then it’s onto the ward where I see a different trials nurse for blood and obs (my usual nurse is on her summer break). Everything is stable and wonderfully normal. Big sigh of relief!

The final appointment is with a different oncologist from my usual one (also on vacation). Pots of pills handed over, and we’re soon on our way home.

After two long days of travelling, it is so good to fall asleep in my own bed.

The end of Summer, turns into the beginning of Autumn: new season, new hope.

Our holiday is nearly over

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Tuesday 19th August

And so our summer journey comes full circle as we return to our starting point. Back in North Myrtle Beach, and the weather is beautiful; swimming in the ocean which is only a few degrees lower than the air temperature; hiring loungers and an umbrella on the beach; making sure we’re covered in high factor sunscreen; wearing hats and drinking lots of water. We visit with friends and are treated to southern hospitality at its best.

This summer break has been different in that we couldn’t visit all the locations we would wish, because of the four-weekly hospital appointments I have. My three days in bed with cellulitis really brought home to me how this disease now affects my life. I will no longer laze all day in the sunshine, now seeking out shade and regularly using sunscreen. But, we did have a wonderful, restful vacation. I will not let cancer beat me; fun is still very much on the agenda!

A few days in Hilton Head

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Sunday 17th August

Five hours North of Orlando is the wonderful Hilton Head Island.

We arrive soon after lunch, unpack a few things, and go and find some shade around the pool. Blue skies, warm seas; perfect. The pelicans are flying overhead, in formation, and a guitarist is playing happy, sunny, beachy music at the tiki bar.

We are here for two nights, and can really relax. No rushing around theme parks or visiting crowded shopping malls. HHI is an amazing place to just re-charge batteries and feel no stress at all. My leg likes this place! Lots of reclining on beach chairs and taking it easy. Even though there is a weather alert, a heat advisory, for temperatures of 98℉, we love the sunrises, sunsets and long lazy, blue-sky days, filled with warmth. The redness at the top of my thigh, from the cellulitis, is still there, and I’m continuing to take the antibiotics. But, the balmy weather and island lifestyle are most welcome.

 

Last days in Orlando

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Friday 15th August

 I awake feeling so much better, and we decide to drive South West to Tampa, and Busch Gardens. I again hire a motorised mobility scooter, and begin our journey around the park. By the time we reach SheiKra the sky is darkening, lightning threatens, and the rides are closed ~ so, so disappointing! We spend quite a while moving around the park, looking at the various animals, but in the end we call it a day, give up, and begin the drive back to Orlando. I think last year, almost the same thing happened, it absolutely poured with rain as we arrived in Tampa, we didn’t even make it into the theme park, turned around and left! Never mind, the new ride Falcon’s Fury has yet to open ~ there’s always next year!

The weather improves upon our return to Orlando, and we go to look at some American classic cars and hot rods.

Our last day in Orlando is spent shopping and packing. We drive up to the Mall at Millennia and browse the shops in cool air-conditioned comfort. Again there is another spectacular afternoon thunderstorm to end the day and clear the air.

We pack and load up the car that evening, ready for a quick getaway tomorrow morning. It has been a different sort of holiday in Orlando this year, what with the thunderstorms and my cellulitis. Lots of activities having to be curtailed. Still, I think we made the most of it, visiting all the theme parks that we had planned upon, just not as frequently as we would have liked!

Florida ~ the first week

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Monday 4th August

We leave South Carolina and begin the long drive down the state, through Georgia, and on into Florida. The temperature rises markedly, the skies are no longer grey, and no more rain! We make an overnight stop at Jacksonville, then on to Orlando the following morning. Theme parks, theme parks, theme parks!

On our first full day in Orlando we visit Aquatica, a fabulous water park, where I can relax under a huge parasol, spreading much-needed shade. The river rapids, lazy river and wave pool are visited throughout the morning, each time returning to the shade to reapply sunscreen. Husband and son are much more adventurous, and try out the more thrilling, tube rides!

The next day we are off, bright and early to Sea World ~ always better to beat the crowds! But even at 8:45am, families are streaming through the entrance! It is a blistering hot day, but there is lots of much-needed shade throughout the park. We manage to find good seats for the Shamu show, and spend 45 minutes enthralled by the killer whales and their marvellous trainers. Antarctica too, is a great experience, and a chance to really cool off!

On Friday we drive South West along I4 to LegoLand, a theme park which opened last year. We walk quickly through the miniature cities, and make our way to the water park. It is unbelievably hot! A welcome dip in the lazy river is most enjoyable. Whilst leaving the park I become increasingly affected by the heat, and my husband has to pour ice-cold water down my neck to try to bring my temperature down. When we return to the car, the indicator on the dashboard shows 104℉. Whoa. I have never really been troubled by hot weather, in fact I have loved it. Perhaps it is the drugs I am taking, perhaps the cancer has changed my body somewhat, perhaps I am getting old!

On Saturday we have a break from theme parks and spend time shopping. However, again I am affected by the heat, and have to return to the villa earlier than expected. Wuss!

Sunday sees us at Universal Studios and Islands of Adventure. Again it is hot, and my left leg is beginning to trouble me. So, husband suggests I hire a motorised wheelchair, complete with sunshade ~ it is an absolute godsend. I can move around the parks without getting all hot and bothered, our bags and cooler can go in the front basket, and for some rides, I can jump the queue! Result 😃  We visit the new Harry Potter ride, and are left feeling rather disappointed. It would take three hours to experience Diagon Alley, the lead-up queue to the ride: Escape from Gringotts. We decided to forgo this, joined the single-riders line, and only had to wait forty minutes. The ride itself is a 3D simulator, does not last long enough, and is not frightening at all! A bit of a let down. We then find Platform 9 3/4, and join the Hogwarts Express to be swiftly taken on a journey across the countryside. Despite Harry Potter, the other thrilling rides never fail to excite, and a great day out was had by all.