Category Archives: Thoughts

It’s Thursday again

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Thursday 23rd April

I don’t think I like Thursdays anymore at all. It’s now six long weeks since that dreadful evening when I couldn’t bring you back to life. Despite mouth-to-mouth and chest compressions, you slipped away and gained your Angel wings. I tried so hard, but you had gone. And now our lives have been changed irrevocably

I will always remember your face as I turned over your warm, but lifeless body. In our bed, snuggled under the duvet, finally at peace and pain-free. No more doctors, scans or chemotherapy.

Visiting your graveside has become a daily pilgrimage. We water the flowers trying to keep them fresh, we touch your wooden cross with the simple brass nameplate, and we talk to you.

Our younger son thinks this is a little unhealthy because it makes us sad and unhappy. But I find standing beside you and speaking to you strangely comforting. We just want you to know that we are close by, that we think of you all the time, that we don’t want you to be alone.

Our son. Our Angel.

We love you. We always will.

We. Just. Miss. You. So. Much. xxxx

Feelings of jealousy

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Wednesday 22nd April

Jealousy. A negative emotion with feelings of insecurity, anger and anxiety. Jealousy is not a good trait to possess.

I don’t think of myself as having a jealous personality, or jealous thoughts.

But today I was jealous. And I felt bad.

We had gone for a coffee and as we were leaving we bumped into a young girl who had been on the same oncology ward as my son. She was having chemotherapy for a brain tumour. We spoke a few times in the day room when we were in hospital at the same time.

As we parted and quickly walked away, both my husband and I started sobbing. I said to him “Do you feel as jealous as I do?”. He said he was thinking the exact same thing. Why was she still alive, and our son was not? Why was she able to be walking about, and not our boy? Why did the treatment work for her, and not for our child?

Just for a moment I had some really bad thoughts. Not wishing this girl any ill, but I did feel so negative about life, and so betrayed. The battle we had put him through, the anguish and the hope. All so futile and pointless now.

It’s two weeks since we buried you.

And I just feel cheated. And it’s not fair.

Lighting candles

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Tuesday 21st April

Your funeral was two weeks ago, in the same church where you and your brother were christened, where we were married, too.

We go there today to light candles for you. To let you know we are thinking about you all the time, and that we miss you terribly.

We sit, watching the flames flicker, the sunlight casting colourful shadows on the stone floor as it glints through the stained-glass windows.

Two weeks ago, so many people came to pay their respects and show condolences. You certainly left your mark on our town. Memories of you are so far-reaching. Such an individual, loving, caring character you turned out to be. Our son.

Going to your graveside is no easier, but we still water the flowers for you, talk to you, and end up weeping. We just cannot understand why this had to happen. We tried so hard to look after you and protect you.

We just miss you xxx

 

Pink blossom

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Monday 20th April

It’s a sunny, blue-sky day. The blossom on the trees in the cemetery is beginning to flower. A bright, vibrant shade of pink. The tree we walk past to reach your graveside is looking beautiful. The sun is shining down on you and the birds are singing for you.

I’m trying so hard to keep it together on these daily visits to you. But despite the beauty of the day, my heart breaks because you are not with us. Our son, fell asleep and gained his angel wings far too soon.

I just find it so difficult to believe that you have gone from our lives. Each day seems without purpose. One blends into another. A long, never-ending stretch of nothingness.

Is this how it’s going to be?

 

A quiet Sunday

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Sunday 19th April

You see, I’m back again. I don’t feel it would be right if I missed a day and didn’t write about you, or how I felt.

It seems as if it would be somehow disrespectful, or might mean that I didn’t care enough. And so here I am. And what to say, today? Not really feeling particularly positive at the moment.

Crying this morning because I miss your voice and your smile and your enthusiasm for the day ahead. Again when we light candles in the church and sit awhile. And again when we go to your graveside. Crying, sobbing, weeping.

We did love you so very, very much, and now that you’re no longer here, we are lost without you.

Time heals. Will it?

You’ll move on. Will we?

The pain will subside. When?

You’ll learn to readjust. Really?

Give grief it’s time. How long?

So many negative thoughts and feelings are flying around right now.

I do need to find some positivity in all this. I look at your photographs and smile with you, at all the fun we had together, traveling the world. We certainly packed in an awful lot of adventures throughout your thirty years.

Remember the good times. The laughs. The joy. The risks. Your happiness. Special moments. Amazing memories. Perfect holidays. Wonderful destinations.

We tried so very hard to give you as good a life as possible.

But nothing can take the pain away right now, thinking of how much we miss you being here with us. xxx

 

Continued grief and loss

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Saturday 18th April

I really am at a loss today in knowing what to write. Do I continue to write about you every single day? Or is it ok if I miss a day or two? It doesn’t mean I love you any less, nor that my grief is subsiding.

In reality, I miss you desperately, every waking moment I’m thinking of you. There are pictures of you everywhere. Reminders of you all over the house.

Will we ‘move on’ without you? No, I don’t think so. You are always going to be in our lives, one way or another.

The cemetery was really cold and windy today, and a small pot of tulips that my sister had placed at your grave had blown over. So we positioned some more stones around the base to keep it upright. I didn’t hear any songbirds this morning either. But it was peaceful there, and we spoke to you about your brother’s birthday yesterday, and how you would have liked his birthday cake.

Sleep tight my darling son.

We love and miss you.

To the moon and back.

And all the world.

xx

A birthday

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Friday 17th April

I suppose there are going to be a lot of these ‘first times’, without you.

Well, today was your brother’s first birthday without you being here. And he did say that he missed opening a card from you. (Even though he knew I was really good at forging your handwriting!)

I was actually going to buy a birthday card from you; one with a lovely photograph of sunflowers, but I thought it might upset our younger son too much.

Anyway, we toasted your health, said how much we missed you, and we knew you were looking down sending kisses our way.

We cried as we walked home after having dinner, thinking of you, and how very much we wish you were still here.

We did go to your graveside this morning and talk about your brother and his birthday. We knew you would want to wish him a happy birthday. In your own way we knew you loved him, and he was so proud of you, too.

We just feel so lost without you. You were such a big presence throughout all our lives.

 

Five weeks

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Thursday 16th April

How long will I keep on counting the weeks since you died?

Every Thursday I remember you. I go through that day in my mind.

I saw you quickly in the morning, before I went off to work. Then later on when you all returned from collecting your brother from the airport. You were happy. You weren’t in any pain. Just a bit tired and not hungry. Going upstairs for a little sleep was the last time we saw you alive.

Five weeks.

Thirty five days.

Eight hundred and forty hours.

Fifty thousand, four hundred minutes.

I remember that day as if it were yesterday. I will never forget.

We are still receiving sympathy cards, (three in the post today). New people come up to us and ask how we are, and say sorry for our loss. And again we visit your graveside, and today we plant some petunias for you. Your floral tributes are still looking beautiful, and we water them carefully to make sure they stay as fresh as possible.

We miss you so very, very much xxxx

Our grief

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Wednesday 15th April

Our grief over the loss of you is immense. For as long as our hearts beat, we will be always missing you.

You had the power to instill within us, such great love and compassion towards you.

You were our life. We lived with you, for you, because of you. And now it’s so damned difficult to live without you.

Your He Man sword on it’s pillow of white flowers is buried with you.

You have the power to live in our hearts forever.

It’s damp and misty when we visit your graveside today, but we must summon up all our strength and power, to talk with you, to share our love for you, to remember the good times, to tell you that you’re safe now.

You are our Starman with Angel wings.

You are He Man who has the power.

Fly free with the angels, sleep peacefully, without pain. Look down on us, and know how deeply we love and miss you xxxx

 

(Delayed) month 15 clinical drugs trial

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Tuesday 14th April

Off to Exeter hospital today for a battery of tests that I should have had done last month.

I have Stage 3c malignant melanoma, the deadliest form of skin cancer.

A mole on my left foot began causing problems just over two years ago, so I had it removed, complete with skin graft. Following a sentinel node biopsy, I learnt that cancerous cells had spread to my lymph nodes at the top of my leg, so I had a left groin dissection in November 2013, leaving me with lymphoedema in that leg, but wearing a support stocking does help tremendously, although it does look ghastly.

For all of last year I was on the double-blind Combi-Ad clinical drugs trial, by GSK. An adjuvant therapy combining Dabrafenib and Trametinib. Monthly hospital visits, with scans, ECG, heart Echo, eye exams, dermatology, haematology and oncology appointments.

Now that I’ve completed the “drugs” part, I’m being monitored every three months for the next two years, then six-monthly for two more years after that. Today I start with dermatology, then blood and obs ~ my blood pressure was a bit high ~ then a CT scan, and finally a visit to the oncologist.

I did find the day very draining, as our elder son would most often come to the hospital with us, and knew the nurses there very well. So it was quite an emotional time, explaining all that had happened. Really quite rubbish to be truthful. Especially since the last five months or so, we have been totally focused on him, and the testicular cancer attacking his body.

Plus, going through the scan, all I could think of was my son, and how I wish his scan had shown a problem that could/should have been spotted or fixed.

The oncologist had a quick glance at my scan images, and all looks good, apart from maybe a slightly swollen thyroid gland. But I will have to wait for the senior radiographer’s report and results from the blood tests. But he didn’t seem unduly worried.

We drove home mostly in silence. Deep in thought. Thinking. If only….. What if…… Why……

We did stop by the cemetery though, to talk with our son, to let him know how I’d got on today. I know that sounds strange, but we find it comforting, and actually necessary to visit each day. To water the flowers, to touch the simple wooden cross, as if somehow we’re connecting with him.

It really doesn’t seem right. I just wish he was back here with us. Why did his treatment fail him? Will we ever get an answer to that question? Will we be told exactly what went wrong?

We have too many unanswered questions going round and round in our heads. Why, why, why?