Sunday 25th October
Although you were never able to be fully independent because of your autism, you did like to wander off to the town or beaches on your own. If you knew a place, and felt safe, then you were quite happy, strolling in and out of book shops, looking through the windows in the High Street, or sitting somewhere watching the holidaymakers. You’d be out of the house for an hour or so, and then you would return, to touch base, just to be sure that we were here.
It was the same in the theme parks of Florida, once you knew the layout, off you’d go, queuing for the rides on your own, safe in the knowledge that we’d meet up again for lunch, a drink or a snack. If you weren’t too sure, you’d run ahead, taking everything in, come back to us, then scamper off again. You probably covered twice or three times the distance that we would walk in a day.
In shopping malls you always wanted to go off on your own, but that was after we had located the food court. We set a period of time, say two hours, and we’d all meet back there. (You couldn’t tell the time, wouldn’t wear a watch, but you were pretty amazing at gauging the passing of time.) Without fail, you’d turn up at the allotted location, exactly at the right time. Sometimes it was uncanny how you managed to do this.
When we stayed in hotels, you liked to be in the same room as us. You said this was because you could see us. You liked to see our faces when we slept. I don’t think you wanted to sleep on your own, and having us close by was reassuring. You wanted to be sure that we were there.
It was the same when you were having chemotherapy, we stayed with you all those nights in hospital. You liked having us next to you, and you’d often want to hold my hand. Again you wanted the reassurance of our presence.
So, just like Piglet, when he takes Pooh’s paw, “I just wanted to be sure of you.”
And we were always, always there for you.
I just wish I could have saved you.
That is all.
Love you forever my darling.
Precious Angel son xxxx