Category Archives: brain tumour

Angry Bird

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Tuesday 16th February

You’re my little Angry Bird
Pretending to stomp your feet
You weren’t really that cross
Mostly quite loving and sweet.

You knew you were different
And that caused some frustration
You found it hard to join in
With poor social communication.

But we did everything we could
To make sure you were accepted
Filling your life with adventures
And ensuring you were protected.

Always seeking the best for you
Forever thinking one step ahead
Trying to avoid any pitfalls
Keeping you close by instead.

Organising everything for you
To keep your routine familiar
Maintaining life on an even keel
So nothing was too dissimilar.

Showing you so much love
Holding you tight, always
You meant everything to us
Happily filling all our days.

And now we miss you massively
The world seems so much emptier
A new life we must confront
Hearts beating that much heavier.

Love you my sweet Angel.

xxxxxxxxx

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July 2012, Costco, Myrtle Beach, SC. Messing around with a beach towel

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So lost without you

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Monday 15th February

Thirty years a close-knit family
You, younger brother, dad and I
That you had special needs
Meant upon us, you did rely.

Thirty years of having fun
Planning trips and holidays
With your happiness in mind
Occupied in so many ways.

Thirty years of taking care
A fierce love of high intensity
We thought it would continue
We would keep on, endlessly.

Thirty years ended so abruptly
Our joyful family existence
Wiped out, to be no more
Disappearing in the distance.

Thirty years of memories
From a family, now reduced
To a lost, adult couple
To a new life, introduced.

Thirty years of living with you.
Now we’re picking up the pieces
Not really knowing how to cope
Without you, sadness increases.

Thirty years. Before and after.
A happy family with you
Just another set of parents
Growing old, without you.

We did have fun though, didn’t we?
I’ll hold on to those memories
So many good times together
And I’ll keep on telling your stories.

Thirty years.
So lost
Without you.
So lost.

Missing you so much.
Love you sweetie.

xxxxxxx

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The colour of the sky this morning, over your resting place

Valentine’s Angel

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Sunday 14th February

I love you
We love you
Everyone loves you.

Just wish you were with us so we could tell you.
Wish we could wrap our arms around you.
Wish we could hold you tight.

Instead we’ll remember the good times.
Think about you constantly.
Feel you in my heart.
Look up to the sky.
Blow kisses to heaven.

I love you so much sweetheart.

My Valentine’s Angel.

xxxxxxx

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April 2010, Plymouth

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Darling boy

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Saturday 13th February

You filled my heart with joy
My darling little boy.

Key West and Legoland
Statues were close at hand.

Elderly people and grannies
You used to call old dearies.

Sweet and full of kindness
Filling you with gladness.

Recalling sweet memories
Fascination of old ladies.

Smiling at your innocence
Our love for you, so intense.

My darling little boy
You filled my heart with joy.

xxxxxxx

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Old granny statue at Key West. August 2013

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A Lego granny. Legoland, Florida, August 2014

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Everything changed

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Friday 12th February

In an instant everything changed;
And it was never the same again.

It’s eleven months today
Since you passed away
I wanted you to stay
And that’s all I’ll say.

Sweet Angel son

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A rainbow over the harbour this afternoon

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The next room is empty

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Thursday 11th February

The next room is empty
But filled with much memory.

It’s where you silently lay
Before they carried you away.

Your bedroom is unchanged
Your books neatly arranged.

Forty eight long weeks ago
All our tears began to flow.

That this could happen
Just unthinkable to imagine.

So near to the treatment ending
Unaware of the tragedy impending.

No one knew your life would end
Just so difficult to comprehend.

Your heart would beat no more
On Angel wings you did soar.

So now our hearts beat as one
Yours, within mine, darling son.

Love you, sweetheart
We are never apart.

xxxxxxx

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A watery rainbow over your resting place, this afternoon

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Thinking about you

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Wednesday 10th February

Thinking about you.
Missing you.
Loving you.

I’ll never stop doing all three
Not now, not ever.
You meant so much to me.

Today I’m thinking of you
Every waking moment
And that is nothing new.

How much we loved you
Will never, ever change
I just miss all you do.

Thinking about you.
Missing you.
Loving you.

Forever and ever.

Special Angel son.

xxxxxxx

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A bright but chilly harbour, today

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I love you

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Tuesday 9th February

I love you
As powerful as the waves
As high as the clouds
As strong as the currents
As dependable as the tides
As blue as the sky
As mighty as the wind
As deep as the ocean
As soft as the sand
I love you.

Angel son.
xxxxxxx

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A stormy afternoon at the beach today

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3 3 3 Days

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Monday 8th February

Three hundred and thirty three days
I miss you in so many different ways.

My sweetheart little Angel boy
Our lives are missing all your joy.

You just want him there with you
But you know he’s not going to.

He’s in your head all the time
Little starman, soaring sublime.

Love you forever.
Missing you every day.
xxxxxxx

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The three of us, London, April 2014

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My Carolina Panther Angel

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Sunday 7th February

The last time we all went to America for our summer vacation was in August 2014.
Most often we would begin and end our road trips in North Myrtle Beach SC; we got to know the area very well indeed, and have many friends there.

Following a heavy afternoon storm, with much rain and thunder, we decided to eat at the Overtime Sports Bar. You loved their giant plate of nachos, and could watch a myriad of television screens.

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Nachos and screens and motorbikes and NASCARs

When the time came to leave, I think we hovered inside the entrance for a while, as the rain was still lashing down.
You took it upon yourself to clamber all over the carved statue of their Carolina Panther. A formidable looking beast.

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You and the Carolina Panther

I bet Overtime will be exceedingly busy, with the Super Bowl 50 being played tonight.
I wonder how well the Carolina Panthers will do against the Denver Broncos?
I’m not sure you would have been that interested in the game, but you certainly would have watched Beyoncé in the half-time show.
You thought she was pretty awesome, and you could do a mean impression of Crazy in Love.

So, my little Angel.
Look down and sing along with Beyoncé.
Thinking of you and that Carolina Panthers statue.
Love you forever and ever.

xxxxxxx

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